The Perricelli Hope Foundation is an non-profit 501(c)(3) organization
that is dedicated to raising awareness and funds for the
Children’s Brain Tumor Tissue Consortium (CBTTC) at the Children’s Hospital of Philadelphia (CHOP).
that is dedicated to raising awareness and funds for the
Children’s Brain Tumor Tissue Consortium (CBTTC) at the Children’s Hospital of Philadelphia (CHOP).
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Our Daughter, Julia
Julia was slumped over to one side and was very lethargic and could barely respond to questions. She was carried into the ED by her Dad where she was seen almost immediately. She was very agitated and the initial thought was that she was dehydrated given her recent history of vomiting. Unfortunately, we had a terrible feeling that was not the case. After fluids did not help, she was taken for a CAT scan and within minutes of Julia returning to our room, an ER doctor pulled us outside and confirmed our worst fears. Julia had a large tumor on the right frontal cortex of her brain. |
Pediatric brain tumors are the leading cause of cancer death in children ages 14 and under and 4,600 children are diagnosed annually in the United States with brain tumors. However, less than 4% of the National Cancer Institute’s research investments are spent on childhood cancer.
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We have learned an enormous amount about pediatric brain tumors and their treatment over the past couple of years. What has really stuck with us is the fact that there is a lack of funding for pediatric cancers and that brain tumors are being treated with toxic chemotherapy medications that were developed in the 1950’s. The prognosis for the majority of children diagnosed with brain tumors is very grave and over 30% of children diagnosed with a brain tumor will die.
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It is our hope that through the ground breaking research that is supported
by the CBTTC we will find a cure for all pediatric brain tumors.
Help us meet our goals!
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Our hope is to annually provide the CBTTC with funds needed to continue their research and reaching their goal to finding a cure to this devatasting disease.
